TITLE

Child to adult: transitional care for young adults with cystic fibrosis

AUTHOR(S)
Al-Yateem, Nabeel
PUB. DATE
July 2012
SOURCE
British Journal of Nursing;7/28/2012, Vol. 21 Issue 14, p850
SOURCE TYPE
Academic Journal
DOC. TYPE
Article
ABSTRACT
Managing the transitional care needs of young adults with a complex chronic illness such as cystic fibrosis (CF) as they move from a child-orientated to adult setting has been reported in the literature as challenging and stressful, and may impart additional risks to the young person's health. However, in the Republic of Ireland, which has the highest incidence of CF in the world, the current services provided for children during this transitional period are still reported as underdeveloped. The aim of the author's research was to explore and understand the experience of young people before and after their transitional care, and the factors that both contribute to and hinder that experience. A qualitative approach guided by phenomenological tradition, and using in-depth interviews. The findings suggest that there are a range of needs required for patients during this transitional period, including the need for information, interventions that decrease the negative feelings associated with transition (e.g. distress, anxiety, uncertainty), structured service, and an approach to care that focuses on young adults. The author concludes that health professionals in the clinical setting who have responsibility for young adults in transitional care should focus on these needs to provide a more relevant and effective transition service.
ACCESSION #
85895619

 

Related Articles

  • The Experience of Transition in Pregnancy and Childbirth among the Married Immigrant Women in Korea. Lim Hyun Suk // Korean Journal of Women Health Nursing;Sep2011, Vol. 17 Issue 3, p243 

    Purpose: This study was to provide understanding of the meaning of the transition experiences in pregnancy and childbirth among the married immigrant women. Methods: Data was collected through a face-to-face interview from 11 married immigrant women. Their conjugal lives were followed using the...

  • Adaptation Experiences in South Korea of Men defecting from North Korea. Kyoung Mi Kim; Miyoung Kim // Journal of Korean Academy of Nursing;2013, Vol. 43 Issue 3, p431 

    Purpose: The study was done to explore meanings and essence of the experience in South Korea of men defectors from North Korea. Methods: Data were collected from March, 2011 to May, 2012, through in-depth interviews with ten men defectors. Data analysis was conducted using the process of...

  • Experience in Acceptance of Hospice by Patients with Terminal Cancer: A Phenomenological Research. Kwak Su Young; Lee Byoung Sook // Journal of Korean Academy of Nursing;2013, Vol. 43 Issue 6, p781 

    Purpose: The purpose of this study was to further understanding of the experience in acceptance of hospice by patients with terminal cancer and to explore the structure of this experience. Methods: A phenomenological methodology was used for the study. Participants were nine patients who were...

  • Experiences of Living with Coronary Artery Bypass Graft: a Qualitative Study. Abbasi, Mohammad; Mohammadi, Nooredin; Nasrabadi, Alireza Nikbakht; Sadegi, Tahereh // HAYAT;2013, Vol. 19 Issue 4, p1 

    Background & Aim: Coronary artery bypass graft is a critical intervention for patients with coronary artery disease. This surgery is associated with significant changes and unique experiences in lives of patients. This study was conducted to understand the experiences of patients with coronary...

  • The lived experiences of newly qualified children's nurses. Hollywood, Eleanor // British Journal of Nursing;6/7/2011, Vol. 20 Issue 11, p661 

    Aim: This paper reports a study that explored the lived experiences of newly qualified registered children's nurses (RCN) in their transition from postgraduate student nurse to staff nurse. Research question: What are the experiences of newly qualified RCNs in their transition from postgraduate...

  • A Phenomenological Study on Illness Experience of Patients with Pressure Ulcer. 유미수; 이명선 // Korean Journal of Adult Nursing;Oct2015, Vol. 27 Issue 5, p515 

    Purpose: The purpose of this study was to describe the illness experience of patients with pressure ulcer. Methods: A phenomenological methodology was used for the study. The data were collected by individual in-depth interview with seven participants with pressure ulcer during 2013~2014. All...

  • Shock, Adjust, Decide: Reproductive Decision Making in Cystic Fibrosis (CF) Carrier Couples-A Qualitative Study. Myring, Jessica; Beckett, William; Jassi, Rupinder; Roberts, Theresa; Sayers, Richard; Scotcher, Diana; McAllister, Marion // Journal of Genetic Counseling;Aug2011, Vol. 20 Issue 4, p404 

    Cystic fibrosis (CF) is the most common recessive condition affecting the White British population. Facilitating reproductive decision making for couples at genetic risk for CF is an important aspect of genetic counseling practice in the UK. The purpose of this study was to explore the...

  • Ethical challenges in neonatal intensive care nursing. Strandås, Maria; Fredriksen, Sven-Tore D. // Nursing Ethics;Dec2015, Vol. 22 Issue 8, p901 

    Background: Neonatal nurses report a great deal of ethical challenges in their everyday work. Seemingly trivial everyday choices nurses make are no more value-neutral than life-and-death choices. Everyday ethical challenges should also be recognized as ethical dilemmas in clinical practice....

  • 'Fighting for care': parents' perspectives of children's palliative care in South Tyrol, Italy. Darbyshire, Philip; Mischo-Kelling, Maria; Lochner, Lukas; Messerschmidt-Grandi, Caterina // International Journal of Palliative Nursing;2015, Vol. 21 Issue 11, p542 

    Background: Children's palliative care in Italy develops comparatively slowly. Recent legislation is enabling, but foundational research exploring parental experiences and perceptions is lacking. Aim: To investigate the experiences and perceptions of parents in South Tyrol, Italy regarding...

Share

Read the Article

Courtesy of THE LIBRARY OF VIRGINIA

Sorry, but this item is not currently available from your library.

Try another library?
Sign out of this library

Other Topics